I personally don’t look very far into the future, besides keeping up on our doctor and dentist appointments and saving cash for a wedding gift the end of October. I admit we are both scared about the Renal appointments and the money everything will cost in dealing with my husband’s CKD, stage 4 severe.
I have to cook low sodium, low, potassium and low phosphorus dishes. So I go to Fresnesius website where our Renal doc is located and use the recipes there plus on Davita website, just trying to keep him healthy and ward off the dialysis as long as possible.
I just watched a DVD we were given from the Fresenius Kidney Care website https://www.freseniuskidneycare.com/ It’s bad enough my husband needs surgery to make his vein larger to hold the large dialysis needle, but it mentions a payment plan? We are already living week to week, and he will have more and more medical tests and their bills, and once dialysis starts that will also add up. Because of my own job history and more recent Pelvic Organ Prolapses I haven’t worked full time in many years. I admit I’m worried. The doc wants him on a transplant list right away because it often takes 6 years to get one.
So we had my husband’s second Renal Doc. visit yesterday after his kidney ultrasound and blood tests. It seems he’s dehydrated from taking two diuretics for his HBP so that fact plus his generic cholesterol med are causing painful reoccurring gout in both ankles and the med to get rid of it take weeks if not months to improve it. He’s not supposed to take ibuprofen for the gout pain because it worsens the kidney disease but it’s the only thing that allows him to walk at work.
We are feeling overwhelmed of course. He needs surgery on his arm to make a site for the catheter for dialysis which takes 2-3 months to heal. The doc wants him on a kidney transplant list. How can we afford all this? I don’t know what the future holds but we’re just living one day or week or month at a time.. We were referred to this website for help. We’re a member of the DiVita.com website already but they claim he’s in stage 5 according to their questionnaire and the doc claims he is stage 4. https://www.freseniuskidneycare.com/ckd-treatment/kidney-disease-education-class
My husband was recently diagnosed with Chronic Kidney Disease. Saturday he had a new set of blood tests and kidney ultrasound. Tomorrow we go see the Renal doc. I have already been using the CKD diet for him, cooking many special low sodium, low fat, low potassium recipes from the DiVita website. I have even been making low sodium bread and hamburger rolls the last month. I have some lo-so bread dough rising in the fridge right now which comprises of using 1/4 tsp salt in a loaf of bread versus 1 tsp, and using half the amount of yeast and adding olive oil instead of any other fat. I add 3 TB Extra Virgin olive oil to each loaf of bread instead of the usual 1 Tb because you need the extra fat to make the bread softer longer. The Renal Doc said to switch to Olive Oil and all I had was Organic Extra Virgin, I bought it at Walmart Great Value brand. I’d rather use classical if it’s on sale I will next time. I’ve also gone back to a more stringent low sodium diet than I have been using in the past for his HBP. Low sodium pizza is awful if you ask me, but I make it. I also make low sodium spaghetti sauce and he uses less sauce on the pasta.
Honestly I accidentally used the same amount of yeast I would use in my regular bread dough. I was making it from memory not the written recipe. I hope it doesn’t rise too fast or taste too different.